Whether you’ve just assumed the role of caregiver or you’ve been at it for awhile, there are a bewildering array of resources available. Here is a list of the ones Kim and I find to be the most helpful; we update this as we find great additional resources, so check back often!
We wanted to be sure to cover as many bases as possible, so you’ll see some crossover on these lists.
|AARP: Resources Caregivers Should Know About||A fairly comprehensive list of agencies you may need to contact and other resources. We suggest bookmarking this site.|
|Alzheimer's Association||This is a great "getting started" site. Billed as "the leading voluntary health organization in Alzheimer's care, support and research. They also have a 24/7 helpline: 800.272.3900
|American Society on Aging: 25 Organizations That Take Care of Caregivers||A great list of helpful caregiving resources|
|Kid Caregivers||We first learned of the remarkable 11-year-old Hailey Richman in the September 2018 issue of Woman's Day. Hailey founded this site; its mission is to support children who are caring for a family member.|
|National Alliance for Caregiving||The Alliance is "dedicated to improving quality of life for families and their care recipients through research, innovation, and advocacy."|
|National Institute on Aging: Alzheimer's Disease and Related Dementias||This is the U.S. government's portal for information on Alzheimer's disease and related dementias care, research, and support. It's an excellent all-around reference guide.|
|Puzzles to Remember||Founded by Max Wollack in 2008, Puzzles to Remember s a 501(c)3 organization that provides puzzles to nursing homes, veterans facilities, and other facilities that care for Alzheimer's and dementia patients.|
|U.S. Department of Health and Human Services: Resources for Caregivers||A list of relevant government agencies. Note that some of the links may be out of date.|
|Institute on Healthcare Directives||The Institute's mission is "To serve patients by facilitating the creation of safe & effective advance care planning documents of all types (Living Will, DNR orders, POLST or MOLST) & to facilitate as well as enable the safe, timely & effective storage, retrieval & utilization of such documents with specified focus on patient safety." The site contains a wealth of information and offers many products and services for caregivers.|